[Ophelia's Pond] Jumping on the bandwaggon

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[Ophelia's Pond] Jumping on the bandwaggon

Postby Tao on April 19th, 2011, 5:48 am

Honestly, I think that everyone has those times. I suffer from it quite a bit myself!

For what it's worth, I think that you're a really good writer, especially now that I know you're Jiina (I feel like I should know these things >_>)! Don't write yourself off so easily; just because your creative juices are running low doesn't mean that you aren't every bit as talented as everyone else here. :)
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Ophelia on April 29th, 2011, 11:01 am

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God Save Our Future King and Queen!

(It's an Australian thing)
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Dimitri on April 29th, 2011, 11:03 am

Yes I teared up during the ceremony. It was beautiful. I'm not all abs.

-Dimi
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Karc on April 29th, 2011, 11:04 am

*is all emotional and cries with Dimitri and Ophelia*

GOD SAVE THE ROYAL COUPLE!!!
Experience is something you don't get until just after you need it.
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Ophelia on May 1st, 2011, 6:56 am

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[Ophelia's Pond] Jumping on the bandwaggon

Postby Ophelia on May 22nd, 2011, 11:23 am

Anxiety is difficult to deal with. I think what makes a lot of this true is that firstly, it's hard to define. I get absolutely no worry when walking down the street with my mother to go and get coffee - on the contrary, such is pleasant and genuinely what I love about life. But mention to me going to the local mall where I may potentially see people I know, and a panic attack has me gripped in seconds. Mention writing to me, and I am in bliss, but mention the necessity of a new plot to me, and I'm in hysterics. I don't know what sets me off, and it is a learning curve. I find that what sets me off one day will not the next, and I struggle to keep up with the changes. A lot of it doesn't even make sense. I get panic attacks when my mum tries to clean my room for me. I think I isolate myself in my room in my bed on purpose, then, because that is what I know and that is what I am safe in. Anything else ... the unknown is a risk to me. I hate anxiety disorder.

I go back to school tomorrow. My doctor told me to take a week off to lower my stress levels, and while it has done so, it probably wasn't the best idea - because now my stress levels are back up at the thought of going. It may seem really inconsequential to a lot of people; the whole 'I don't want to go to school' thing. I know a lot of older people think it is. And I know you think once you're an adult, it doesn't matter. And you're right - once you're an adult, it probably won't matter. But it matters to me now and it affects me now. I think that's why a lot of the ageism gets to me. But I digress, that is not the point of this blog.

In going back to school, I won't be on all day posting. I am therefore writing up a list of all my outstanding threads of projects, and will be crossing them off or adding to it as I go. Sort of a running record, so I get to the satisfaction of seeing it drop down.

Wow, I have too many PCs and threads ... theses are in no particular order, and if I haven't responded for a while, I have not forgotten you! Just busy. You may nudge me if you need to.

Ophelia:
  • The Third Party (Julian)
  • Step One (Zakita)
  • Flora Of Lhavit (Development)

Edalene:
  • Even In Death (Mycroft)
  • Fix Me! (Conrad, Denen)
  • A Very Big Day (Birthday Thread)
  • Determination (Sam)
  • Love Me Not (Denen)
  • Hungry Like The Wolf (Solo)
  • The Past Comes Back To Haunt Us (Daeva)

Jiina:
  • It Takes A Thief (Isette)
  • Anniversary (Tao)
  • Cream With Your Tea? (Neville)
  • The Star Festival
  • Keep Your Friends Close (Raiyari)

Maiara:
  • Finish her CS
  • Apply for gnosis
  • Wait for Taivas
  • Searching

Sulavik:
  • The Worst Taste In Men (Gural)
  • Blood And Sweat (Robert Cithon)
  • Flowers And Wine And A Sunset ... What? (Aello)
  • A Willing Pain (Irriari)
  • Luncheon (Murmur)
  • Hope Is For Pansies (Daeva, Kendall)
  • That's Gonna Hurt In The Morning (Daeva)
  • Bumping Into You (Zvi)
  • Whole Existance Is Flawed (Solo)
  • Out Of The Closet (Solo)

Tira:
  • Mud Can Make It Work (Ianira, Mihai)
  • Prisoners Of War (Solo)
  • I Saw Him First (Naama)
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Edalene on May 22nd, 2011, 3:55 pm

If you were born with healthy genes, you may know me but you don't understand me. I was not as lucky as you. I inherited the predisposition to chronic pain, fatigue and forgetfulness. I was diagnosed with fibromyalgia (FMS) after months, years or even decades of mysterious physical and emotional problems. Because you didn't know how sick I was, you called me lazy, a malingerer, or simply ridiculous.

If you have the time to read on, I would like to help you understand how different I am from you. WHAT YOU SHOULD KNOW ABOUT FIBROMYALGIA

1. FMS is not the newest fad disease. In fact, it isn't a disease at all, and it isn't even new. In 1815, a surgeon at the University of Edenburgh, William Balfour, described fibromyalgia. Over the years, it has been known as chronic rheumatism, myalgia and fibrositis. Unlike diseases, syndromes do not have a known cause, but they do have a specific set of signs and symptoms which, unfortunately for the patient, take place together. Rheumatoid arthritis and lupus are also syndromes

2. The many physical and emotional problems associated with FMS are not psychological in origin. This is not an "all in your head" disorder. In 1987, the American Medical Association recognized FMS as a true physical illness and major cause of disability.

3. Syndromes strike life-long athletes as viciously as they do couch potatoes. They can be disabling and depressing, interfering with even the simplest activities of daily life.

WHAT YOU SHOULD KNOW ABOUT ME
1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can't help you with yard work today, it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

3. My forgetfulness - Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don't have any short-term memory at all.

4. My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities - I just can't stand it! "It" could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the "aggravating everything disorder." So don't make me open the drapes or listen to your child scream. I really can't stand it.

6. My intolerance - I can't stand heat, either. Or humidity. If I am a man, I sweat...profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don't feel compelled to point this shortcoming out to me. I know. And don't be surprised if I shake uncontrollably when it's cold. I don't tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression - Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian's patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My need for therapy - If I get a massage every week, don't envy me. My massage is not your massage. Consider how a massage would feel if that charley horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.

11. My good days - If you see me smiling and functioning normally, don't assume I am well or that I have been cured. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

12. My uniqueness - Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

I hope that this helps you understand me, but if you still doubt my pain, your local bookstore, library and the internet have many good books and articles on fibromyalgia. Author's note: This letter is based on communications with people throughout the world, males and females, who suffer from fibromyalgia.

It does not represent any one of the over 10,000,000 people with FMS, but it can help the healthy person understand how devastating this illness can be. Please do not take these people and their pain lightly. You wouldn't want to spend even a day in their shoes...or their bodies. Author unknown
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Ophelia on June 2nd, 2011, 4:07 am

NOTICE!


To anyone threading with:
  • Ophelia
  • Edalene
  • Tira
  • Sulavik
  • Jiina

I am going through a tough time right now. Yes, I am aware of how sissy that sounds. But I am having panic attacks and stress outs daily, and I find it hard to write. At the moment, I am just trying to do whatever I can to even get out of bed in the morning, which I am finding extremely difficult. This means that if I take a week or longer to post, this is why. I make no apologies for how long I take to post, but I do apologise if it means the thread dies out. But I find it hard enough to eat, let alone find the creative energy to write.

And if you complain to me about this, I will send you to the back of the list. <333

Sorry and thank you for understanding!
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Isette on June 4th, 2011, 10:25 pm

-huggles and love-
Sending you my bestest wishes and warmest thoughts, Ophie. <3
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[Ophelia's Pond] Jumping on the bandwaggon

Postby Chemar Tisserand on June 10th, 2011, 4:14 pm

XOXOXOXOXO
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